Research Studies

Study Title

Georgia ALS Registry: A Feasibility Study

Enrollment Status

Completed

Principal Investigators

Michael Benatar, MD, PhD

Study Type

Other

Goals

Efforts are underway to develop a national ALS registry within the United States. In preparation for this national effort, we undertook a pilot study in the state of Georgia. The goal of this study was to determine the usefulness of existing data from sources such as Medicare and the Veterans Administration, for correctly identifying patients with ALS and related motor neuron diseases.

Enrolling

(ALS patients)

Eligibility

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Study Involvement

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Contact

Links

Primary Funding Source

CDC/ATSDR

Related Publications

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Wittie M, Nelson LM, Usher S, Ward K, Benatar M. Utility of capture-recapture methodology to assess completeness of amyotrophic lateral sclerosis case ascertainment. Neuroepidemiology. 2013;40(2):133-41. Epub 2012 Oct 24.

https://pubmed.ncbi.nlm.nih.gov/23095852

Benatar M, Wuu J, Usher S, Ward K. Preparing for a U.S. National ALS Registry: Lessons from a pilot project in the State of Georgia. Amyotroph Lateral Scler. 2011 Mar;12(2):130-5. Epub 2010 Sep 15.

https://pubmed.ncbi.nlm.nih.gov/20843169

Related Presentations & Lectures

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